Coalition wants mandatory genotype tests before marriage to curb sickle cell

A coalition of women and civil society groups in Niger State, Nigeria, is calling for compulsory genotype testing for couples before marriage. This initiative aims to curb the prevalence of sickle cell disease within the country.

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The condition occurs when both parents who are carriers of the sickle cell gene pass it on to their unborn children during pregnancy.

The Medical Women’s Association of Nigeria (MWAN) and a coalition of civil society organizations made this appeal during a sensitization campaign for World Sickle Cell Day. Dr. Aisha Musa, a Consultant Paediatrician at the General Hospital, Minna, explained that sickle cell disease is a hereditary blood disorder affecting millions globally. It occurs when both parents carrying the sickle cell gene pass it to their children, leading to conditions like painful crises, anemia, infections, and potentially early death.

"The importance of genotype screening before marriage cannot be overemphasised. Informed decisions could help prevent the birth of children with sickle cell disorder," Dr. Musa stated. Mrs. Hasana Joan Kpetu, representing the civil society coalition, urged parents to ensure children with the condition receive proper medical care, nutrition, and hydration to prevent complications.

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The importance of genotype screening before marriage cannot be overemphasised. Informed decisions could help prevent the birth of children with sickle cell disorder.

Dr. Kudirat Abdulganiyu, Coordinator of Non-Communicable Diseases at Minna General Hospital, highlighted sickle cell disease as a significant health challenge for young people in Nigeria. Alhaji Suleiman Dada, District Head of Mekunkele, pledged community support and encouraged members to spread awareness. Stakeholders are appealing to all levels of government, health institutions, religious organizations, and community leaders to sustain awareness efforts and strengthen support systems for individuals with sickle cell disease through better healthcare access and social inclusion.

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Our young people must be guided, mentored, and supported. Communities must create structures that provide purpose, direction and hope for the youth.