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'Dismantled from the inside out': Finding connection after child loss

From ABC Australia · () English

Summarized and contextualized by DistantNews.

At a glance

In-depth Named sources Context piece
  • Kimberly Stevens created an app called Kids Connecting Parents to help bereaved parents connect with each other.
  • The app aims to provide support, especially for those in remote areas, after Stevens lost her teenage son Ethan in 2021.
  • The app has 230 registered parents across eight countries and is gaining interest as a "digital grief tool."

For Kimberly Stevens, the profound grief of losing a child is an isolating experience, but connecting with other bereaved parents offers a sense of comfort and belonging. "It just kind of feels like I'm home almost," Ms Stevens said.

I get this feeling of comfort โ€ฆ it just kind of feels like I'm home almost.

โ€” Kimberly StevensStevens described the feeling of connecting with other bereaved parents.

When her son Ethan died in 2021, Stevens found a significant lack of support for parents who had lost a child, particularly in remote locations like Moranbah, a mining town in central Queensland. Ethan, a vibrant 13-year-old, was diagnosed with T-cell acute lymphoblastic leukemia on Christmas Day in 2020 and passed away nine weeks later from fungal pneumonia contracted during chemotherapy. "It was really quite quick and very traumatic," recalled Ms Stevens, who is also a psychologist.

It was really quite quick and very traumatic.

โ€” Kimberly StevensStevens recounted the rapid and difficult nature of her son Ethan's illness and death.

While navigating her own grief and caring for her younger son, Stevens realized the power of shared experience. "When you sit down with someone who is on that same journey, there's so much that doesn't need to be said," she explained. "You're not constantly thinking that you need to explain how you're feeling. If you're crying one second, then laughing the next, it's OK because the other person understands." She described this connection as a "lifeline."

When you sit down with someone who is on that same journey, there's so much that doesn't need to be said.

โ€” Kimberly StevensStevens explained the unique understanding shared among parents who have experienced child loss.

Motivated to extend this lifeline globally and overcome geographical barriers, Stevens developed the app Kids Connecting Parents. Launched last year after three years of work, the app connects bereaved parents, allowing them to send connection requests to others in their area or internationally. It currently has 230 registered parents across eight countries. Stevens is preparing to present the app's initial findings at the European Grief Conference in Portugal this September. Fiona Maccallum, a senior lecturer in clinical psychology at the University of Queensland, noted the growing interest in "digital grief tools" and the need for comprehensive bereavement support, including social networks and peer connections. Apps like Stevens's, she suggested, can offer a "road map for the future."

You're not constantly thinking that you need to explain how you're feeling. If you're crying one second, then laughing the next, it's OK because the other person understands.

โ€” Kimberly StevensStevens elaborated on the non-verbal communication and acceptance found in peer support groups.
DistantNews Editorial

Originally published by ABC Australia. Summarized and contextualized by our editorial team with added local perspective. Read our editorial standards.