Living with Tourette's: Celebrities and Individuals Share Their Experiences
Translated from Swedish, summarized and contextualized by DistantNews.
At a glance
- Tourette Syndrome is gaining more public attention, partly due to celebrities sharing their experiences.
- The article features Beatrice Grubb, who describes her journey with Tourette's since her teenage years, managing tics and learning self-acceptance.
- Tourette Syndrome involves tics, which can be motor or vocal, and while coprolalia (involuntary swearing) is a common misconception, it affects only a small percentage of individuals.
Tourette Syndrome is increasingly entering public discourse, with artists like Billie Eilish and Lewis Capaldi sharing their personal experiences. The recent attention on the film "I Swear," which depicts the life of John Davidson with the diagnosis, further highlights the condition, especially after Davidson's involuntary outbursts at the Bafta awards ceremony.
Beatrice Grubb, 26, shares her experience, which began in her mid-teens with motor tics. Initially, she felt embarrassed and felt the need to apologize for her tics, especially during her teenage years in รlvdalen. "I thought it was so difficult because I had very severe tics and I thought it was mostly embarrassing," she told Nerikes Allehanda. Her tics worsened when she experienced mental distress, and suppressing them proved ineffective, often leading to an "explosion" of symptoms once she felt safe.
Over time, Beatrice has learned to manage her condition better. Her tics are now primarily vocal, including tongue clicks and certain phrases. She candidly mentions a "penis tic" as her most ungraceful symptom, acknowledging its potential awkwardness in certain social settings. She attributes her improved management to increased self-awareness, reduced pressure, and allowing herself necessary rest days.
Attending art school, where individuality is accepted, has also been beneficial. Beatrice finds a sense of calm through creative expression, which complements her autism and allows her to enter hyperfocus states. When people react to her tics, she often chooses not to explain unless someone shows genuine interest. Her philosophy is, "You'd much rather laugh with me than at me." She believes that sometimes inappropriate comments can make moments more enjoyable and encourages people to feel comfortable laughing along.
Originally published by Dagens Nyheter in Swedish. Translated, summarized, and contextualized by our editorial team with added local perspective. Read our editorial standards.