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11 bone fractures in two years: Malaysian child suffers from rare brittle bone disease
🇲🇾 Malaysia /Health & Science

11 bone fractures in two years: Malaysian child suffers from rare brittle bone disease

From Utusan Malaysia · () Malay

Translated from Malay, summarized and contextualized by DistantNews.

At a glance

News Named sources Context piece
  • A three-year-old child in Malaysia has suffered 11 bone fractures due to a rare genetic disorder, Osteogenesis Imperfecta (OI).
  • The child, Ayden Mukhriz Ahmad Saiful Amirol, has been unable to walk or play normally and is confined to home.
  • The family is seeking financial assistance for his upcoming treatment, which is costly and requires ongoing sessions.

A three-year-old boy in Malaysia is living with a rare genetic condition that causes his bones to fracture with alarming frequency. Ayden Mukhriz Ahmad Saiful Amirol, from Taman Balok Makmur, has suffered 11 bone fractures in the past two years due to Osteogenesis Imperfecta (OI), also known as brittle bone disease.

His mother, Nur Jannatul Syuhadah Mohd. Azman, explained that the family's ordeal began in 2024 when Ayden, then 1 year and 8 months old, broke his bone for the first time. Since then, he has experienced recurrent fractures from even minor falls. Doctors confirmed in May that Ayden has OI, a very rare genetic disorder.

After undergoing various examinations, doctors confirmed in May that my son has OI, which is a very rare genetic disease.

— Nur Jannatul Syuhadah Mohd. AzmanExplaining the diagnosis of her son's condition.

The condition significantly restricts Ayden's mobility. His mother must constantly monitor his movements to prevent accidental falls. In March, he fractured his left femur near the hip, and in June, he broke the same leg again near the knee. Currently, his arm is also fractured. Ayden can no longer walk or play like other children and remains bedridden at home.

He is no longer able to walk and play like other children, and is just confined to the house.

— Nur Jannatul Syuhadah Mohd. AzmanDescribing her son's current physical state.

Ayden is receiving treatment at Tengku Ampuan Afzan Hospital in Kuantan and is scheduled to begin his first treatment with the medication Pamidronate on August 19. Doctors have informed the family that there is no specific cure for OI, and the treatment aims to strengthen his bones, though the risk of fractures will persist throughout his life.

The treatment requires sessions every three months, with an estimated cost of RM1,500 to RM2,500 per session. The family is appealing for public donations to help cover the treatment costs. Contributions can be made to Nur Jannatul Syuhadah's CIMB account: 7049755781.

The treatment needs to be done every three months, with an estimated cost of between RM1,500 to RM2,500 for each session.

— Nur Jannatul Syuhadah Mohd. AzmanDetailing the cost and frequency of the required medical treatment.
DistantNews Editorial

Originally published by Utusan Malaysia in Malay. Translated, summarized, and contextualized by our editorial team with added local perspective. Read our editorial standards.

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