DistantNews
Support us
Boy needs Dhs11 million life-saving injection for rare disease
๐Ÿ‡ฆ๐Ÿ‡ช United Arab Emirates /Health & Science

Boy needs Dhs11 million life-saving injection for rare disease

From Gulf Today · () English

Translated from English, summarized and contextualized by DistantNews.

At a glance

News Sources not specified Context piece
  • A young boy, Adnan Mohammed Al Qadi, suffers from a rare and expensive genetic disorder, Duchenne muscular dystrophy.
  • His family is seeking funds for a life-saving gene injection costing over Dhs10.6 million.
  • The story highlights the child's struggle and the family's hope amidst the overwhelming treatment cost.

Adnan Mohammed Al Qadi, a young boy battling Duchenne muscular dystrophy, faces a daily struggle against a debilitating illness that has captured the heart of his family. His condition has left him unable to join his friends in play, a stark contrast to the joyous sounds of Eid celebrations he hears from afar.

His family is in a desperate search for funds to afford a gene injection, one of the most expensive in the world, costing an overwhelming Dhs10,600,000. This exorbitant cost places the life-saving treatment far beyond their reach, leaving them feeling helpless as they watch their son suffer.

Adnan's mother tries to maintain a brave face, hiding her tears as she wishes him a happy new year. His innocent question, "Will I be able to play with my friends next Eid?" hangs heavy in the air, leaving her speechless. He dreams not of toys or gifts, but simply of waking up without pain and experiencing a normal childhood, much of which has already been stolen by his illness.

Abdullah Ali Al Falasi, CEO of Dar Al Ber Society, highlighted the UAE's leading role in charitable and humanitarian work. He emphasized the nation's commitment to sustainable humanitarian efforts and the deeply ingrained culture of charitable work and social solidarity within Emirati society. Dar Al Ber Society is presented as a prominent institution operating with advanced standards to achieve excellence in this field.

A donation link is provided for those wishing to contribute to Adnan's treatment, offering a glimmer of hope for the family's plea.

The UAE is one of the leading countries in charitable and humanitarian work, having achieved, by the grace of Allah and by the wise leadership and its humanitarian institutions, a prominent position among the most generous countries in the world.

โ€” Abdullah Ali Al FalasiCEO of Dar Al Ber Society, speaking about the UAE's commitment to humanitarian efforts.
DistantNews Editorial

Originally published by Gulf Today in English. Translated, summarized, and contextualized by our editorial team with added local perspective. Read our editorial standards.