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Health Minister: Turkey Studying Outcomes of SMA Treatments Funded by Donations

Health Minister: Turkey Studying Outcomes of SMA Treatments Funded by Donations

From Cumhuriyet · () Turkish

Translated from Turkish, summarized and contextualized by DistantNews.

At a glance

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  • Turkey's Health Minister Kemal Memişoğlu announced an ongoing study into Spinal Muscular Atrophy (SMA).
  • The study aims to clarify the outcomes of SMA treatments funded by donations, particularly those administered abroad.
  • The ministry is scientifically investigating whether patients who received medication via donations actually improved.

Turkey's Health Minister Kemal Memişoğlu has revealed that the ministry is conducting a comprehensive study into Spinal Muscular Atrophy (SMA). The initiative seeks to meticulously examine the effectiveness of treatments funded through public donations, especially those obtained from international sources. Minister Memişoğlu stated that the ministry will provide full transparency regarding the outcomes of these donation-based treatments. "We are also conducting a study on SMA. We will explain the results of promises made to people, saying they would get better abroad with donations collected for SMA," he said. The focus is on scientifically verifying whether patients who received SMA medication through fundraising efforts actually experienced recovery. This investigation aims to address concerns and ensure accountability surrounding the use of donated funds for critical medical treatments.

We are also conducting a study on SMA. We will explain the results of promises made to people, saying they would get better abroad with donations collected for SMA

— Kemal MemişoğluAnnouncing the Ministry of Health's investigation into the effectiveness of SMA treatments funded by donations.
DistantNews Editorial

Originally published by Cumhuriyet in Turkish. Translated, summarized, and contextualized by our editorial team with added local perspective. Read our editorial standards.