Honduras Hemophilia Society Urges Health Authorities to Improve Patient Care and Treatment Access

The Honduran Society of Hemophilia is calling on health authorities to enhance the comprehensive care provided to individuals living with this inherited blood disorder. The organization emphasizes the critical need for timely diagnoses and continuous access to innovative treatments to improve patients' quality of life and prevent severe complications.

Hemophilia, a condition where blood does not clot properly, can lead to recurrent bleeding, joint damage, disability, and life-threatening hemorrhages if not managed effectively. In Honduras, an estimated 500 to 600 people have hemophilia, though the actual number may be higher due to underreporting. The society currently supports around 400 patients.

Despite recent treatment advancements, many patients still struggle with timely access to modern therapies. Compounding this issue, specialized services are primarily available in Tegucigalpa and San Pedro Sula. This geographic concentration forces many families from other regions to travel significant distances for medical attention or to collect medication.

Wilmer Rodríguez, president of the society, highlighted that access to modern treatments empowers patients to pursue their life goals with greater autonomy and security. He stressed that care must extend beyond medication to include rehabilitation, physiotherapy, psychological support, and ongoing medical monitoring. Patient and family testimonials underscored the challenges in diagnosis and medication access, but also the resilience of those affected.

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the access to modern treatments allows patients to develop their life projects with greater tranquility, autonomy and security.