Fiji Faces Calls for Stronger Support for People Living with Albinism Amid Health and Social Challenges

Individuals with albinism in Fiji are grappling with severe health challenges, pervasive discrimination, and social exclusion, prompting urgent calls for greater public support. Dr. Mike Kama, Deputy Director of Hospital Services, highlighted that while albinism affects approximately one in 20,000 people globally, the prevalence in Fiji is estimated to be much higher, around one in 700. He stressed the need for enhanced protection and full societal inclusion for this community. Dr. Kama explained that people with albinism commonly experience visual impairment and have a heightened risk of skin cancer due to sun exposure. They also face harmful social stigma. The Ministry of Health is implementing a coordinated response that includes early diagnosis, regular skin and eye examinations, provision of vision aids, counseling, and preventive healthcare. Registered individuals receive essential supplies like sunscreen, sunglasses, wide-brimmed hats, SPF lip balm, and umbrellas free of charge. However, Dr. Kama emphasized that healthcare services alone are insufficient. He advocated for a comprehensive, whole-of-society approach involving educational institutions, social services, civil society organizations, and development partners. Albinism advocate Jonna Matavesi urged Fijians to abandon prejudice, noting that many individuals with albinism still endure stares, ridicule, and exclusion based on their appearance. Matavesi reiterated that albinism is a genetic condition, not a disease, and does not diminish a person's capabilities. She called for communities to replace judgment with understanding, asserting that everyone deserves equal respect, kindness, and opportunities.

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Albinism is a genetic condition - not a disease- that does not limit a person's potential.