Thalassemia Survivor to Run 21km Race, Educating on Screening Importance

Thalassemia Beta Major survivor Stanley Joewono is set to participate in the Virgin Half Marathon Jakarta Running Festival 2026 on October 24, 2026, running 21 kilometers.

For Joewono, this 21-kilometer race is more than just a test of physical endurance. As a survivor of Thalassemia Beta Major, each step he takes carries a message of change. Through his participation, Stanley aims to ignite public concern for Thalassemia and collectively move towards the goal of a Thalassemia-free Indonesia.

Thalassemia Beta Major is a genetic blood disorder that requires patients to undergo regular blood transfusions. Despite living with this condition since childhood, Stanley refuses to let his illness define his limits. Instead, he uses sports to demonstrate that Thalassemia survivors can still achieve, inspire, and contribute to positive change.

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If I can run 21 kilometers, I believe we can all take one simple step to prevent Thalassemia.

"If I can run 21 kilometers, I believe we can all take one simple step to prevent Thalassemia," Stanley stated in a press release received by Republika on Tuesday (July 21, 2026). Beyond running, Stanley has launched a crowdfunding campaign on Ayobantu.com to support Thalassemia education and screening initiatives. He believes that early detection of carrier status among the public increases the chances of preventing the birth of a new generation with Thalassemia major.

"I urge the public to support Thalassemia screening programs. Screening is not just about examination; it's about giving the next generation the opportunity to live healthier lives. The earlier it's detected, the greater our chances of prevention," he added.

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I urge the public to support Thalassemia screening programs. Screening is not just about examination; it's about giving the next generation the opportunity to live healthier lives. The earlier it's detected, the greater our chances of prevention.