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Uruguay government appeals court order to fund cancer drug for prominent scientist
๐Ÿ‡บ๐Ÿ‡พ Uruguay /Health & Science

Uruguay government appeals court order to fund cancer drug for prominent scientist

From El Paรญs · (9h ago) Spanish Critical tone

Translated from Spanish, summarized and contextualized by DistantNews.

TLDR

  • A Uruguayan virrologist suffering from a brain tumor is seeking state-funded medication not registered in the country.
  • The Ministry of Public Health and the National Resources Fund denied his request, citing legal and registration limitations.
  • A judge ordered the ministry to provide the medication, but the ministry has appealed the decision.

The case of Dr. Gonzalo Moratorio, a scientist who played a crucial role during the COVID-19 pandemic, has deeply resonated with the Uruguayan public. His battle with a brain tumor and the subsequent struggle to access life-saving medication, Nivolumab and Relatlimab (Opdualag), highlights a critical issue in our healthcare system. While Dr. Moratorio is a public figure, widely respected and admired for his contributions, his personal plight has brought to light the systemic challenges faced by many in accessing specialized treatments not yet registered in Uruguay.

Es una persona muy conocida y muy querida. Yo al inicio de la pandemia estuve en contacto con รฉl, es realmente una persona muy querida, que nos convoca a todos a sentir esa empatรญa, la solidaridad y la comprensiรณn de estos problemas. Su caso, que รฉl ha llevado con una fortaleza admirable, nos convoca a mejorar el acceso y tratar de que no pasen estas cosas

โ€” Alicia FerreiraAlicia Ferreira, president alternate of the FNR, expresses empathy for Dr. Moratorio's situation and calls for improved access to medication.

The National Resources Fund (FNR) and the Ministry of Public Health (MSP) have stated their institutional inability to procure the medication, citing regulations that permit funding only for registered drugs and within approved budgets. Alicia Ferreira, the alternate president of the FNR, explained that while the human aspect of the situation evokes deep empathy, the legal framework restricts their actions. The FNR's mandate covers a list of 67 medications for 45 diseases, and Opdualag is not among them. Similarly, the MSP cannot purchase medications without approved credit.

This situation, however, transcends mere institutional procedure. It raises questions about the balance between regulatory adherence and the urgent need for medical care, especially for individuals like Dr. Moratorio, whose work has benefited the nation. The fact that a judge ruled in his favor, ordering the ministry to provide the medication, underscores the perceived injustice of the situation. The subsequent appeal by the ministry, despite the judge's order that the medication must be supplied while the appeal is pending, has only intensified public concern and debate about the government's priorities and its commitment to its citizens' well-being.

desde el punto de vista humano, personal, tanto ella como Lustemberg sienten "una enorme sensibilidad y congoja con lo que estรก pasando, pero desde el punto de vista institucional ni el MSP ni en FNR pueden comprarle la medicaciรณn que รฉl necesita

โ€” Alicia FerreiraFerreira explains the institutional limitations faced by the FNR and MSP in procuring unregistered medication.

From our perspective at El Paรญs, this case is not just about one individual; it's a reflection of broader societal concerns regarding healthcare access and the often-bureaucratic hurdles that can impede timely treatment. While international media might focus on the legal battle, we in Uruguay are keenly aware of the personal sacrifice and the public's deep connection to Dr. Moratorio, making this a story of national significance.

El FNR porque por ley solo puede brindar los medicamentos que fueron incorporados despuรฉs de un largo proceso de anรกlisis. No puede brindar esos que no estรฉn โ€”en la listaโ€”, y menos medicamentos que no estรฉn en el paรญs, como es el caso de Moratorio y de unas 300 o 400 personas mรกs que hicieron recursos de amparo

โ€” Alicia FerreiraFerreira details the legal restrictions on the FNR, which can only fund registered medications.
DistantNews Editorial

Originally published by El Paรญs in Spanish. Translated, summarized, and contextualized by our editorial team with added local perspective. Read our editorial standards.